Hello.
I would like to start this blog by setting out the goals I would like to accomplish with this blog.
- My first priority with this blog is to have new, detailed information about living with bronchomalacia. All of the information I find in google searches is from last year. It is one month into 2016. The last time a blog about bronchomalacia was updated was in 2013. This is not fair to those currently living with it looking for advice or reassurances.
- My second priority will be to give hope to those who are parents with a child with bronchomalacia. I am a well adjusted(ish) adult living with bronchomalacia. These parents should know that their child as a future.
- My last priority will be to give myself a space where I can express my chronic illness in a way that will not upset my friends and family. Sometimes I need to rant about pain and discomfort. Since those around me cannot do anything about it, it makes them uncomfortable and awkward. I don’t feel ashamed of my illness, however I don’t need their concern. I just need an outlet.
I have titled my website “that’s a human” because that is what I am. A human. A multifaceted individual with goals and aspirations. I am not my disease. Until today, I do my best to make my life about everything but my lung condition, and actively try to keep it out of my life. I would like to change that. Just because its not something I enjoy, doesn’t mean its ever going away. And try as I might, its going to continue being a part of my life. I am human. And because of that, I need to deal with all the aspects of myself, even the ones I dislike.