Beginnings

Hello.

I would like to start this blog by setting out the goals I would like to accomplish with this blog.

  1. My first priority with this blog is to have new, detailed information about living with bronchomalacia.  All of the information I find in google searches is from last year.  It is one month into 2016.  The last time a blog about bronchomalacia was updated was in 2013.  This is not fair to those currently living with it looking for advice or reassurances.
  2. My second priority will be to give hope to those who are parents with a child with bronchomalacia.  I am a well adjusted(ish) adult living with bronchomalacia.  These parents should know that their child as a future.
  3. My last priority will be to give myself a space where I can express my chronic illness in a way that will not upset my friends and family.  Sometimes I need to rant about pain and discomfort.  Since those around me cannot do anything about it, it makes them uncomfortable and awkward.  I don’t feel ashamed of my illness, however I don’t need their concern.  I just need an outlet.

I have titled my website “that’s a human” because that is what I am.  A human.  A multifaceted individual with goals and aspirations.  I am not my disease.  Until today, I do my best to make my life about everything but my lung condition, and actively try to keep it out of my life.  I would like to change that.  Just because its not something I enjoy, doesn’t mean its ever going away.  And try as I might, its going to continue being a part of my life.  I am human.  And because of that, I need to deal with all the aspects of myself, even the ones I dislike.

Beginnings